( Sleeping beauty has called off negotiations. )
" How awful it must be to be in pain every day.." the cashier lady says to me. " Yeah." I numbly reply.
" It’s amazing what you get used to."
" But how do you deal with it??"
And then I grabbed a carton of cadbury creme eggs from the shelf nearby and smashed them into her face over and over until there was nothing left but a gasping creme covered wound of her face.
I didn’t really, but I wanted to. Pain makes me antisocial. My meds are not working. I’ve been away from my computer for weeks. No socializing at all. It turns out that almost nobody misses me. No calls, no concerns.
I love my children, and they keep me going. But if I was not a mother…
I would have killed myself long ago. I’m so tired of this life. I’m so fucking tired of this life.
Asked by Anonymous
I cannot afford to see all (or any…) of the specialists I need to see or have the tests I need to receive a diagnosis.
As far as the government is concerned I am 100% healthy and able bodied because I don’t have a label.
Symptoms and use of a wheelchair don’t mean shit, unfortunately… applying for disability is extremely intensive, requiring multiple doctors reports and only a certain few illnesses qualify in the end.
It will take years for me to apply and qualify for SSI/SSDI- but I have to be able to see doctors before I can even begin the process.
What you guys have to remember is that the system is designed to keep people OFF assistance, not to help them get on.
this last sentence though.
five years with ehlers-danlos & no doctors.
i am in the gap.
i am losing hope.
Asked by Anonymous
I have some of these issues, such as caffeine and some pain pills don’t work for me, but it’s not all of them. I can get drunk and my antidepressants work, I believe. Any ideas?
Resistance is an issue with EDS that is gaining awareness at least with dentists. If I don’t have a natural resistance to a drug my body quickly develops one. As to why I have no clue http://www.dentalfearcentral.org/fears/not-numb/