I don’t even know. I’m not technically disabled in the governmental sense, and I do not qualify to collect disability benefits; however, I have to ask for accommodations for physical tasks and more often than not, my mobility is greatly impaired. Well, technically, I have…
This was one of the hardest things for me, to call myself disabled. I couldn’t work a 9 to 5 now if I had to, still working on trying to get on disability so I can remain poor forever.
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I had not heard of EDS though I work in healthcare. I wish you well. How unhelpful is that on a scale of 1 to 10? I like your blog though. You liked a photo I orginally posted in case you are wondering why I ended up here.
LOL, it’s not unhelpful. You know something you did not previously know and thus everyone’s life has been enriched. There is no such thing as useless knowledge. And thank you. I wish I had more time for actually writing and being arty with it, but alas.
Hello to the recent influx of EDS’ers who’ve come my way. I’m laying here with my back throbbing, reading tumblr and wondering if medical marijuana is really an option or if it will fuck the rest of my health care. Dreading my upcoming Dr’s appt on the sixth because I’m going to get a lecture about taking pain pills yet again.
I’m seriously debating using a large amount of curse words in explaining to them that every fucking day is a mess of pain and horror for me, that my arms and legs have become heavy and hard to use, that my back constantly feels like it’s exploding and that I’ve had a headache for a month.
I doubt it will do me any good, but it might make me feel better right before they take away what little pain relief I’ve had going for me.
To anyone with hypermobility and or Ehlers Danlos, has anyone dealt with organ shifting? Lately whenever I stretch I can feel things moving around, and then it’s almost like I have massive cramps and a horrible stomach ache for a while after. The pain is in different areas after different…
Oh yes. And I sympathize. So far I’ve heard ” well we’ve never actually SEEN a case of EDS ” five times. Unfortunately having the diagnosis hasn’t seemed to do me much good either. I have nearly constant stomach trouble from mine.